The Toll of Dementia Caregiving
The majority (80%) of people with dementia are receiving care in their homes. To put this in perspective, 16 million Americans provide more than 17 billion hours of unpaid care for their loved ones. It is notable that dementia caregivers provide care for a longer duration than caregivers of people with other types of conditions.
Caregiving takes its toll and this is especially true for dementia caregivers. Dementia caregivers report higher levels of stress, more depression and anxiety symptoms, and lower levels of subjective well-being, self-efficacy, and anxiety. Further, caregivers experience worse physical health outcomes, including higher levels of stress hormones, compromised immune response, antibodies, greater medication use, and greater cognitive decline.
So what can we do?
There are protective factors for stress and depression: Larger social networks, frequent social contact, and the ability to arrange for assistance from friends are moderators of depressive symptoms and caregiver burden. Respite care is especially important. Research shows that even a few hours of respite a week can improve a caregiver’s well-being. Respite care can take the form of different types of services in the home, adult day care, or even short-term nursing home care so caregivers have a break or even go on vacation.
It is critical that caregivers make their needs known. For example, identify a caregiving task or a block of time that you would like help with. Perhaps there’s a book club meeting you’d like to attend or some time alone to read a book. Be ready when someone says, “What can I do to help?” with a specific time or task, such as, “It would be really helpful for me if you could stay with mom on Tuesday night so I can go to my book club for 2 hours.”
Be understanding if you are turned down. The person may not be able to help with that specific request, but they may be able to help another time. Don’t be afraid to ask again. If you have trouble asking for help face to face, try writing an e-mail to your friends and family members about your needs. Set up a shared online calendar or scheduling tool where people can sign up to provide you with regular respite.
Need more suggestions or resources? Boulder County offers support for caregivers through its AAA Caregiver Initiative. Alzheimers.gov provides helpful tips for dementia caregivers.
